It’s changing out there. Just like last time. There’s a storm coming, Harry. And we all best be ready when she does.
Are you from the UK? I’m only wondering because you said mum, not mom, but if so I’m not sure how the health care system works there. I’m from the US and here I just made an appointment with a geneticist familiar with connective tissue disorders and got diagnosed at the appointment easy as that. I ended up getting another diagnosis later just to be sure but it was the same process. The only thing that took longer was waiting for the blood results to make sure I didn’t have vascular.
EHLERS DANLOS ZEBRA
TOP: CAN PLACE HANDS FLAT ON FLOOR WITH STRAIGHT LEGS
BOTTOM: CAN’T GO UP THE STAIRS
my rheumy told me that fibromyalgia, hypermobility syndrome, and everything like that is all the same. That bugs me. Also, I want a name. I want a diagnosis. I think I have EDS (Ehler-Danlos Syndrome) though. All of the symptoms fit me perfectly.
Behold. The exos thumb spica. When heated up, the plastic becomes malleable, allowing it to be adjusted to the exact size of one’s hand/arm. Very lightweight and TOTALLY WATERPROOF. It isn’t too hot, even works for me and my severe heat intolerance.
I got it today when I dislocated my thumb. Every brace in existence will not stabilize my thumb, except this. They can be bought online, and of course have different types for different injuries.
Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cell in the body is floppy, so fingers are definitely an issue for many of us. I can almost guarantee that for the majority of us, writing is not only slow and painful but nearly impossible at times. FIne motor skills? What even are those? An EDSer surely doesn’t have any of those. Even typing which is far easier than writing, is painful and daunting at times. But last year I joined the population of shiny zebras by getting fitted for a set of Silver Rings Splints and they are beyond magical.
For those of you who have not heard of The Silver Ring Splint Company, they are a company that custom makes finger splints that look like elegant pieces of jewelry. Don’t believe me? Well I can’t even tell you how many compliments I’ve received for them. Nobody even suspects that they might possibly be medical. But more importantly, they work amazing! I still have hand pain and finger dislocations when performing fine motor skills and writing is definitely not something I look forward to but I have saved myself thousands of painful dislocations, I can open doors easier, type faster, write longer and hold objects in my hands without looking like an alien from a sic-fi movie. With the rings on my fingers actually look like fingers rather than tentacles!
The company is also family owned and the people are so sweet and helpful!
If you are having trouble with hand pain, clumsiness and dislocations please check out this amazing company!
ripping out someone one’s headphones is the 8th deadly sin
there was a guy next to me on the train who was trying to connect to wifi and I just got this overwhelming urge to protect his naïvety so I silently made him a hotspot so he will now believe for the rest of his life that if u try hard enough then the train wifi will come to u I feel like santa
About your hair, you needn’t care, you look beautiful all of the time.
the gay agenda
or as i call it
Jesus take the wheel
Whoa there Jesus
alphabet soup more like times new ramen am i right